Time

Round 3: My Round 3 infusion was this past Monday; it was a tough road to get there from the week prior but it occurred and went well.  I have one more to go for this 4-week period; I fly out tomorrow for that last infusion on Monday.  

In keeping with my journey thus far, this past week has been met with new challenges, new people, new eye-openers and new found Blessings.  I have had another difficult 24-hours with excruciating head pain, the origin of which I have no idea.  Perhaps it's coming off the medications from the week prior, perhaps it's my Ibrutinib pills or the Rituxin infusion, perhaps it's my disease or perhaps it's just literally in my head.  Whatever the case, I am learning more about my life and my reality. 

I have had to come to terms in the past few months that time is a constraint that I just cannot let dictate my day.  The reality of my days now is that I need to sleep when I am tired, work when I am capable, eat when I am hungry and not feel guilty when things don't get done.  I do my best to keep up with the things in life that need to be accomplished, but I am actually okay right now sitting on the couch at 10:00 a.m. on a Saturday morning still in my jammies.  Time now seems more like a random number that keeps track of the days, not a necessity for what I do and when I do it.  

This week was met with surprise calls, messages, cards and drop-ins from friends, old and new.  It has been so comforting to know the love and concern of those in my life.  This is a tough time for my family and I, but it is still an amazing time filled with kindness and beautiful reminders of how exceptional this life is.