4 out of 5
I spent several days this week in Houston having another restaging PET scan, the results of which were nearly identical to the scan in January. There is still uptake in my thyroid however both my doctor and the radiologist are unsure if it is continued lymphoma involvement or if it is background thyroid activity. I am therefore, still staged as a 4 out of 5.
As such, and so as to continue moving forward, I will stay on my Ibrutinib and will have a bone marrow biopsy in April, a test I truly dread. The last biopsy I had was without sedation and it was unbelievably painful. As described by a friend, it is like having a lightening bolt shot through your bone. I will be put out for this one. The results of the biopsy will determine how much longer I continue on Ibrutinib before I have the "big chemo."
I have felt fantastic this last 28 day cycle. The combination of my drugs and the reduced dosage of Ibrutinib has kept my pain at bay. There are times, however, when I feel that I am just on the precipice of pain, but thankfully, I have not fallen off that cliff. Life is good and I am thankful for my days and especially grateful for my pain free time.
Remember to hug often and tell those whom you care about that you love them as our time here is short. I am especially reminded of this today as I attend the funeral of a dear friend who lost his cancer battle. I am spending some time reflecting on my brief, yet poignant relationship with Ray and listening to a favorite song that we shared, "I can only Imagine." I had told him that when my time came I thought I would surely dance when I met Jesus, Ray thought he would stand in awe. Rest in Peace, Ray, stand in awe and be forever without pain.
My prayers go up for Diane, Stacie, Jennie and family.